A blog about a French horn player's journey with Focal Embouchure Dystonia; one of the only existing documentations of rehabilitation through videos and writing spanning over a decade. This blog shares resources, research, and information on FTSED and other music performance related injuries. Katie also advocates awareness, education, does presentations, provides guidance; and brings the musicians dystonia community together thru online groups, streamed interviews and conversation.
Friday, September 19, 2014
Jerald Harscher: The Poised Guitarist
I wanted to share Jerald Harscher's fantastic website on my blog. I had always been meaning to and now just got around to it! You can find his website at: The Poised Guitarist. He is a wonderful person to chat with and very kind, so please contact him if want to know more!
Jerald is a guitarist who has helped many (MANY) musician's with hand-related injuries and Focal Task-Specific Hand Dystonia. He can help you lessen tension in your playing and guide you throughout recovery. He knows a great deal about body mapping which I believe is essential to a musician overcoming any type of injury, and for prevention in general.
If you are looking for information, resources, help, and knowledge on anything hand-related within music, please contact him! He is a great resource. Check out his forthcoming book, videos and information. It is even helpful for brass players to read his writings over the hand/arm movement. Sometimes we use a heavy amount of tension in our grip on our instrument which can sometimes transfer and/or add extra pressure on our embouchure via the arm force.
Tuesday, September 9, 2014
Quantification of Instability of Tone Production in Embouchure Dystonia
Quantification of Instability of Tone Production in Embouchure Dystonia Link
I finally have a quick moment to update my blog. Right now I just wanted to share another article I came across! A really great read which discusses how hand dystonia can be objectively assessed, yet it is extremely difficult to do with embouchure dystonia. This research shows a possible way of measuring embouchure dystonia through the frequency of a note being played.
I finally have a quick moment to update my blog. Right now I just wanted to share another article I came across! A really great read which discusses how hand dystonia can be objectively assessed, yet it is extremely difficult to do with embouchure dystonia. This research shows a possible way of measuring embouchure dystonia through the frequency of a note being played.
Wednesday, August 13, 2014
Roger Frisch Undergoes Deep Brain Stimulation
I just wanted to share this video! Roger Frisch, concertmaster of the Minnesota Orchestra underwent brain surgery to overcome his essential tremors. I'm so happy it helped him overcome them completely! Essential tremors and dystonic tremors both have no known source of cause. As well, they both involve misfiring signals from the brain.
However, essential tremors are much different than dystonia. Essential tremors are usually in just the hand, arm, and fingers (mostly all at once) and are a constant tremor (even when not playing their instrument). Whereas Focal task-specific dystonia, the tremors are set off by a specific motion or movement or task initiated (in other words they only happen when a person is playing their instrument), and the tremors are irregular or sporadic. Essential tremors usually develop in older age, and dystonia usually occurs in young adults 25 and up.
There are many people with general types of dystonia who undergo brain surgery, but not many musicians who do due to the difficulty stated below...it's not easy to find out how to correct the tremors or where the signal is coming from when the musician is not playing their instrument. In this case, he has essential tremors and was able to play his instrument during surgery. I can't imagine! I don't think I could ever be brave enough, nor afford it.
However, essential tremors are much different than dystonia. Essential tremors are usually in just the hand, arm, and fingers (mostly all at once) and are a constant tremor (even when not playing their instrument). Whereas Focal task-specific dystonia, the tremors are set off by a specific motion or movement or task initiated (in other words they only happen when a person is playing their instrument), and the tremors are irregular or sporadic. Essential tremors usually develop in older age, and dystonia usually occurs in young adults 25 and up.
There are many people with general types of dystonia who undergo brain surgery, but not many musicians who do due to the difficulty stated below...it's not easy to find out how to correct the tremors or where the signal is coming from when the musician is not playing their instrument. In this case, he has essential tremors and was able to play his instrument during surgery. I can't imagine! I don't think I could ever be brave enough, nor afford it.
Thursday, July 31, 2014
Quick Catchup
I haven't been able to write a blog post for the month of July! I've been so busy!!! With school coming up very fast, I've been working hard to save money for books and rent, and there's been so many events in Boulder this summer. As far as my playing is going, it's good as usual, just taking my time. I'm still having a bit of issues with the right side of my jaw in the far back corner. I've been able to go higher on my horn more consistently, and my lips don't quiver, but instead make air-leaks on some of my lower notes. I've been playing a lot of scales, arpeggios, and a little bit of etudes when I can, but it's only once a week. When school starts I'll be transferring my acupuncture record to CU and will receive it closer to home. The only issue so far is the back of my jaw like I said. There is a slight dull pain, but most of all it just feels stiff and I have to crack it by moving my jaw side-to-side, and then heatpack it for a while and I feel better. I hope I'm not developing TMJ. But it doesn't hurt in the joint, just the bottom far back corner of my jaw every now-and-then. Anywhoo! I'm excited about school and looking forward to being involved in music again!
Thursday, May 1, 2014
May Video Blog
This video was done on a whim, but I think I covered a couple improvements in the short amount of time filmed. Next time I'll use a tripod. haha! Will try get on here when can. :)
Saturday, April 5, 2014
April 5th Acupuncture Update!
I have some pretty awesome news! Now that the tissue around my back, shoulders, and neck have been loosened up (combined with daily stretching exercises, an item/technique given, and some pain relief stuff), the pathways that run up into my face are now open. I don't know the terminology.
Before they had to do acupuncture right on the face, and around my face, but no matter how many needles they put further away ...like in my arms, hands, feet, or even behind my ears or on my neck never made a difference before...because I had so much blockage from tissue and tension.
However, now they can finally do acupuncture needles in farther away areas like on my hands and feet, etc. and I can feel it in my face!!!! It's such a weird feeling, because I didn't think it was possible for those areas to affect my face, but I could feel the blood current pulsating all the way up into my face, and I could feel my muscles and nerves start to respond.
Last week they put needles in a bunch of places, but what hit me the most was a needle they placed in the side of my hand. They also use to put a needle between my thumb and index and that didn't work for a while, and then one day it was really intense, and I felt the sensation travel down into my wrist. However, this one that was in the side of my hand...nearest the pinky....I felt it in my upper face around my nose, and behind my ears.
What's even more surprising is I could feel some muscle contractions start to flare up in my lips and around my nose, and 3 minutes later all of a sudden they calmed down. In the past it took the whole session to finally see the contractions calm down...and they only calmed down a bit...I could still feel them, just less noticeable. However, this time, the completely calmed down.
For the first time in forever, I tried puckering my lips outward (like a duck face) very slowly and I had NO spasms! Then I tried rolling back my lower lip slowly ...up and back over my teeth, and it didn't spasm at all. The feeling of my face was so drastically different than before too. Different than any other sensation. It felt heavy....like my face was normal. I'm not use to things feeling THAT normal. I couldn't believe the ease of movement in my face without a spasm taking over, or without pain. I could still feel some throbbing around my forehead on the sides, near my ear....but the muscles in my face felt different. It felt heavy....like my movements were stable. STABLE!
I don't know how to describe the feeling of stable. I felt like I was placed in a normal body with a normal face, with normal movements. I also could feel the left corner of my face pull back even further without difficulty when I smiled. Usually when I try to make very slow movements; like doing a sly grin (pulling my left corner of my mouth slowly back and up) there is contractions beneath. Or even when I try to slowly crinkly my nose, my upper lip feels unstable. But for once nothing!!!
I was so shocked that I had to keep looking in the mirror and doing it over and over again, just to see if a spasm would happen. Anywhoo, even though the symptoms started to set in about 4 days later, I was still ecstatic about how long I went without symptoms. I know it can only keep getting better and better from here on.
My acupuncturist asked me how I feel about sessions once a week. I said it was absolutely necessary, and that I noticed the symptoms come back 4 days later...so I want to be consistently addressing it. She said she is proud I am so very aware of my symptoms because not everyone keeps a log of what they feel or when things reoccur or how they arise. Also she agreed every week is best. I told her about how the one time I couldn't get in for 2 weeks and I felt like I was back at ground zero.
My session this previous week was just as good. We did the same treatment, including some work on my back. I was feeling sore around the ridge on the back of my head, behind my ears, and in my right shoulder. I also felt the constant need to squeeze my upper back muscles and neck. The soreness I felt was no longer in a very small specific area as before....for the first time the dull soreness spanned across a greater length of my face; for example from the sides of my nose all the way down into the sides of my chin...whereas before I would usually feel soreness in one or the other, but never tied together. Again, 3-5 minutes into my session the contractions around my face/lips went away.
We'll see how things go this next week. But I'm very happy and surprised with the progress made. It may seem small, but to me it feels worlds different than before. I told my acupuncturist that on a scale of 1-10 (10 being the highest pain) the pain in most areas is now down a to a 4 or 3, and as far as my spasms/contractions they are also at a 3 or 2 in the larger areas I get them in. Anywhoo, it's so hard to describe what I'm going through, but I still feel the need to write about it. I can definitely feel the nerve going from behind my ear, into the side of my face and up near my cheekbones right now flaring up...but it's been flaring up on and off. However, as the days pass, the consistency of the flare has gone down. I don't feel as sore in so many areas all over now, just in certain areas, but broader ...if that makes sense.
I'm so very happy with it all! I still am on cloud 9 just remembering how my face felt normal for a couple of days. I know that tension in my upper body may be a lifelong battle, but I feel through this experience I am learning how to prepare and protect myself from overusing my muscles and nerves....and most importantly I'm learning how to LISTEN to my body and being highly aware of it's signs and changes given. I feel I understand the complexities of people's physic much more....well...maybe not understand....but respect and am mindblown by the human body and how it functions...and how each individual's form and function varies.
Thursday, March 13, 2014
Stretches, Deep Tissue Massage, Myofascial Release, and Horn Playing
Two sessions ago I had some tissue relieved around my back. After that session I had all the soreness and tension move up into primarily my neck. I felt like the contractions around my neck were so strong they were choking me (I'm being overdramatic, but it really did hurt). I could feel a lightening like shock start from the back of my head, run down my neck, and into my shoulder blade and right shoulder. This happened everytime I tried to turn my head to the left. I didn't have tremors, but if I tried to pull my face to the left and hold it there, a spasm would creep up and jerk my head to the right. I knew this feeling in the past....
It felt very similar to my encounter with neck dystonia in the past. I kind of got freaked out. I asked my doctor about it and they said it was definitely a pinched nerve, trapped by the surrounding tissue. We were doing everything we could to release the tissue in the places I felt either pain, soreness, contractions, spasms, or tenderness. But just recently it had flaired up in my neck.
So this week I've had a lot of deep tissue massage to help loosen up the tissue in my back, shoulders, neck, and lower jaw, then combined with acupuncture, and myofascial release. My neck feels so much better now!!! I can still feel the nerve a bit irritated in the right side, but there's definitely been a softening of the tissue. My shoulders and neck have never felt this light, relaxed, and fluid....like butter. My right side is of course still a little tense in areas.
So this week I've had a lot of deep tissue massage to help loosen up the tissue in my back, shoulders, neck, and lower jaw, then combined with acupuncture, and myofascial release. My neck feels so much better now!!! I can still feel the nerve a bit irritated in the right side, but there's definitely been a softening of the tissue. My shoulders and neck have never felt this light, relaxed, and fluid....like butter. My right side is of course still a little tense in areas.
This most recent acupuncture session was very good. She said there's been a significant break-through. We made great progress. She was working on loosening up the tissue right on that fleshy mound at the back of my neck. She did some type of stretch with my lower jaw and was also pushing on tissue back there, and there was a huge release. We also did a lot of needles around nerve points. My skin has been red for 2-3 days straight now. She said that was normal though and that this is great news because it means the blood circulation is consistent now, and that the pink around my face will go away in time, but for now it is a good sign we hadn't seen before. I also was very lucky to receive a device that will help me at home.
I'm feeling really good right now. The pain in my face has gone down significantly, and I only feel slight throbbing up near the sides of my eyes along the zygomatic nerve. Otherwise most of my tension and pain is still in my neck and shoulders, but less intense than before...wayyyyy less tense. One a scale of 1-10, my pain before was close to a 9, and now it feels more like a 4 or 5. Again, I'm not playing my horn at all. I'm not allowed to until my body is 100% free of pain, soreness, muscle contractions, and spasms.
I've also been doing stretches to help with my muscles around my upper back, neck, and shoulders. Here are a couple that help me out a lot (I tried to find them online as best as I could), and have done wonders for me within the last couple of weeks:
Also this too ---> :) Link: Upper Back Stretches
Friday, March 7, 2014
All Signs Lead to the Source
My acupuncturist did some needs around the areas I felt soreness, but also did a bunch on my back...and my god....did I feel the blood start to immediately take over my right back shoulder. I could feel this intense warm feeling that was almost heavy. I could feel my muscles loosing up and a sense of relief....a painful relief if that makes sense. I had never realized how much tension there was in my shoulder. I always knew my shoulders were pretty crappy because I've always had football/quarterback shoulders that are very broad and tense. I always thought it was genetic as I see the exact same shoulders in my biological family.
Anywhoo, after that session the soreness moved from the right side of my shoulder to the left, and I could feel soreness behind my ears and all the way down the back of my neck. I felt part of the back of my jaw on the right side loosen up since the muscles on the back of my right shoulder loosened up or did something. I felt a change. It was somewhat better, but not completely relaxed.....but definitely way better than before.
My acupuncturist/myofascial specialist said that it's normal for winding (what they call what I have in Chinese Medicine) to move around. But it was definitely good that I was finally feeling things in the left side of my face, neck, and shoulder.....whereas my primary symptoms have been on the right side heavily. Therefore the left side is actually the weaker side/non-responsive...and finally we saw a change. I can feel the left side's sensations become just as heavy as the right side....where before like I said it was less noticeable on that side. More than anything acupuncture has made me highly aware of my body even more so. The first couple sessions I didn't notice too much of a change, and the soreness remained in the same areas, but over time I noticed things starting to move around more drastically...like Christmas tree lights that dance to music...that's what I felt like the soreness in my face was doing; just moving all around the place.
This last session my acupuncturist was feeling around my upper body. She's amazing because she can feel and sense where my soreness is...I rarely have to tell her where I'm having problems because she can already tell by just looking at me, or by what she feels. It always blows my mind how much she knows about my facial problems.
Anyways, she was feeling my neck and she said, "Your neck feels like a concrete rock. That's not normal. I bet you this is where your nerve entrapment is really coming from...your neck/shoulder muscles. They are all linked. Plus, you said that in the past you had neck tension problems when younger and you couldn't turn your head to the left and they diagnosed you with another form of dystonia. I believe your neck or upper body tension will always be a chronic problem you need to address. It's probably crept up on you again over the years and affected your face. Also combining that tension with repetitive state of contraction; the way you hold your horn, the muscles being overworked, etc. However, it can be corrected by focusing on better posture, constant care in addressing the tension when it starts, and knowing now where is comes from...in your shoulders and backs, and making sure it doesn't spread any further into your face. When I first saw your spasms in your face, I knew that the source is not always what it seems.
You first felt weakness or a burning/lack of sensitivity in your upper lip, then a dull soreness in the center of your cheeks, then after acupuncture that soreness spread to many different areas of your face, and eventually led to the back of the jaw, then the upper cheekbone, then the lower jaw, then the corners of the mouth, and so forth, and eventually moved to the neck and shoulders, and now the back. Everytime that sore feeling moves, it is like a torch lighting up a pathway that leads to the source. But we can't just work on the source right away...you have to work your way backwards.
I'm guessing what happened is the tension in your back and neck entrapped a nerve, then this led to the muscles in the face having to overwork themselves, this built up tissue in the jaw, and this changed the way your face functions, and eventually led to injury, and pretty soon not only were your facial muscles overworked, but your nerves too, and you're left with a very weak embouchure. No wonder you are experiencing spasms when you play, and now pain. But we have to work our way backwards. We have to loosen up the tissue built up, we have to address where the soreness occurs first around the face. We can address the back and neck at the same time....but you never want to ignore the signs and just address where you think it's coming from. That's just like putting a band-aid on something and hoping it heals all the other areas you feel tension and pain. It's not enough to just relieve tension in one area. All signs lead to the source."
She did some type of ointment on my back and scrapped with something along my shoulders. I felt very relieved after that. More than anything I started to feel more things in my left side than before, which is good!!!! I'm so surprised to feel this. Also she was observing the spasms in my lips when I was showing her my stretches and embouchure formation, and she moved some tissue around my face very gently, and when I tried to do the stretches and embouchure formation again it was completely different...it was less noticeable. The spasms are less noticeable when I form an embouchure, however they are very noticeable when I do the opposite and try to pucker my lips outward like a duck-face. But I did notice the tension in my corners has now moved more lower and I can feel them when I make a frowning face. Overall things look a lot better and my face looks different!!!!
I haven't played my horn AT ALL. I'm determined not to play my horn until I know my face and upper body is 100% free of tension, soreness, and contractions. This week I've been super aware of my posture and I realize one of my biggest problems is of course that which only a woman gets to experience due to their chest. However, I've been working out a lot to try to take less stress of weight on my body, and I already feel better. Ever since moving here, I've lost a total of 41 pounds! I still have 40-50 to go and I'll reach my target. More than anything I just want to take really good care of my body and help take some stress off. I feel so upset that the source of my dystonia symptoms and my nerve damage may be because of the stress put on my shoulders and neck over the years, and especially the lack of care of taking care of my body and even my face while playing at a high level. But of course when you're younger you think you're invincible, especially when things are going great and on cloud 9 with your performances, etc.
Anywhoo, I'm rambling! That's all the news I have for now. Next session is coming up on Monday, and we're going to do some myofascial release again, as well some more work on my back/shoulders/neck. Wish me luck!!!! I know I can overcome this!!!!
Sunday, February 23, 2014
100th Post! Facial Myofascial Release, Acupuncture, Embouchure Dystonia, and Nerve Damage Work on my Face
I think it was 4 weeks ago I had gone on a 2 and a half week stretch without acupuncture. I began to feel the soreness in my face start to creep back in and I had no idea what was going on. Things seemed to be getting better until then.
I was becoming worried. Also even though I'm only allowed to practice 15 minutes a week, I noticed my face was pretty weak due to the intensity of the sessions, so I backed away a bit and have been avoiding my horn as much as possible. However, when I did play, it seemed a lot worse...and I just didn't want to push myself. I realize it's going to take a lot more time.
When I went to my acupuncture appointment I realized my original acupuncturist must have went on maternity leave since there was someone else standing in. We went over my symptoms and paperwork. Surprisingly she specialized in (barnes?) myofascial release and acupuncture. She had some facial damage after a car accident a long time ago, so she knows what it's like being in pain.
There is a huge difference between myofascial release and just a facial massage. I don't know a whole lot about it yet, but will post more links after do some reading. She told me that repetitive movement (such as what I do with my jaw and facial muscles when I play horn) causes the body to build up connective tissue to reinforce the protection of the muscles from being overworked. This tissue becomes too strong and can cause a lot of problems such as nerve entrapment, TMJ symptoms, spasms/involuntary contractions, pain, and can cut off or lessen blood-flow to certain areas of the limb/body part.
She could tell immediately that the right side of my face had a lot of tissue built up and was tense....not soft tissue like it should be. She could see the left side of my face was the side that was weak and not moving properly. The right side also was so tight that the skin was pulling my lower lip....which is what I always see most noticeably when I play horn. Also when I open and close my jaw, the right side has so much tightness that it closes first more than the left side, and the left side is able to go down further when I lower my jaw.
Her aim in the first session was to release some tissue in my face and then do acupuncture to increase the blood flow to the trigger points or areas needed. This required her to push against the tissue on the inside of my mouth. It was very painful!!!!! But! Afterwards the reward was an enormous amount of relief of tension form my face. She was surprised to see an immediate softening of the tissue in one area, and even I could feel how soft my right side had started to feel compared to how it felt before. Even when looking in the mirror, I could see that my physical features were more aligned.
Even more pleasing, was how much less tense my jaw was when I slept at night. I feel like my right side joint had been able to close properly or seemed to sit properly...if that makes any sense. I had always felt like my jaw had been becoming more and more misaligned and thought maybe it was a wisdom tooth coming in or something, but the dentists said I had none coming in.
She's also working on opening up my C1 ...which I think is the cranial nerve?
I am really surprised as to what acupuncture is teaching me. When I first came in, I never expected for things to get so intense, as I only had a slight bit of throbbing in my cheeks...but thought it was because I had been playing a lot in rehabilitation. I never thought much about it. But the sore muscles became more constant and eventually became chronic soreness.......but it always remained in just the center of my cheeks. But once I received acupuncture, it's like all my nerves flaired up, sending signals. I felt certain areas all over my face start to feel sore, and I realize that these types of signals area always signs pointing to the fact that there's something wrong or that there's something more going on besides just the embouchure dystonia symptoms, or just the soreness in my cheeks.
However, the more I received acupuncture, the more relief I've been getting. But the myofascial release I believe is exactly what is getting to the source of my dystonia and pain relief. Acupuncture has helped with the nerves and blood flow in my face, and it's definitely done a lot to help, but myofascial has made such a huge difference in the structure of my face and feeling of my face from the inside-out, that I can't help but notice how significant it is to my recovery....and I've only had two myofascial sessions so far.
Anywhoo! I feel like it was a blessing or miracle that I met her!!!! I'm so glad she knows what I'm going through since being through something similar but different, and her passion about helping those with facial trauma means a lot! I got that feeling like I had fallen into the hands of the right person at the right time. Divine timing!
The soreness in my face was most noticeable near my ear and back of my jaw when I first started acupuncture in November. However after one session of myofascial release, it has now moved to primarily the front of my face and behind my ears, and the back of my head. I also am not allowed to play my horn at all. Which I think is really good. I can do this! She said that if the muscles are always in contracting-mode, they will remain contracted. We must teach the face to have the natural reflex of relaxing again. The body has "contraction" built into it now, and it takes a lot of repetitive work to reverse this and teach the body to relax instead of contract. That is the aim. So playing my horn would just reinforce contractions in my face, so I need to wait until I'm 100% recovered before trying anything again. And even then, I will have to of course relearn how to play my horn avoiding as much tension as possible.
I think myofascial release would be great for even non-injured/disordered musicians. Like sports medicine, but for musicians; it's good to have a licensed professional release some of that tension from the body from time to time.
I am really grateful to God for bringing these people into my life. My acupuncturists have changed my life and I have so much hope and faith with the relief they've given me in this short amount of time. I will do whatever it takes and be patient with however long it takes to make sure my face is relieved 100% of tension! :)
I was becoming worried. Also even though I'm only allowed to practice 15 minutes a week, I noticed my face was pretty weak due to the intensity of the sessions, so I backed away a bit and have been avoiding my horn as much as possible. However, when I did play, it seemed a lot worse...and I just didn't want to push myself. I realize it's going to take a lot more time.
When I went to my acupuncture appointment I realized my original acupuncturist must have went on maternity leave since there was someone else standing in. We went over my symptoms and paperwork. Surprisingly she specialized in (barnes?) myofascial release and acupuncture. She had some facial damage after a car accident a long time ago, so she knows what it's like being in pain.
There is a huge difference between myofascial release and just a facial massage. I don't know a whole lot about it yet, but will post more links after do some reading. She told me that repetitive movement (such as what I do with my jaw and facial muscles when I play horn) causes the body to build up connective tissue to reinforce the protection of the muscles from being overworked. This tissue becomes too strong and can cause a lot of problems such as nerve entrapment, TMJ symptoms, spasms/involuntary contractions, pain, and can cut off or lessen blood-flow to certain areas of the limb/body part.
She could tell immediately that the right side of my face had a lot of tissue built up and was tense....not soft tissue like it should be. She could see the left side of my face was the side that was weak and not moving properly. The right side also was so tight that the skin was pulling my lower lip....which is what I always see most noticeably when I play horn. Also when I open and close my jaw, the right side has so much tightness that it closes first more than the left side, and the left side is able to go down further when I lower my jaw.
Her aim in the first session was to release some tissue in my face and then do acupuncture to increase the blood flow to the trigger points or areas needed. This required her to push against the tissue on the inside of my mouth. It was very painful!!!!! But! Afterwards the reward was an enormous amount of relief of tension form my face. She was surprised to see an immediate softening of the tissue in one area, and even I could feel how soft my right side had started to feel compared to how it felt before. Even when looking in the mirror, I could see that my physical features were more aligned.
Even more pleasing, was how much less tense my jaw was when I slept at night. I feel like my right side joint had been able to close properly or seemed to sit properly...if that makes any sense. I had always felt like my jaw had been becoming more and more misaligned and thought maybe it was a wisdom tooth coming in or something, but the dentists said I had none coming in.
She's also working on opening up my C1 ...which I think is the cranial nerve?
I am really surprised as to what acupuncture is teaching me. When I first came in, I never expected for things to get so intense, as I only had a slight bit of throbbing in my cheeks...but thought it was because I had been playing a lot in rehabilitation. I never thought much about it. But the sore muscles became more constant and eventually became chronic soreness.......but it always remained in just the center of my cheeks. But once I received acupuncture, it's like all my nerves flaired up, sending signals. I felt certain areas all over my face start to feel sore, and I realize that these types of signals area always signs pointing to the fact that there's something wrong or that there's something more going on besides just the embouchure dystonia symptoms, or just the soreness in my cheeks.
However, the more I received acupuncture, the more relief I've been getting. But the myofascial release I believe is exactly what is getting to the source of my dystonia and pain relief. Acupuncture has helped with the nerves and blood flow in my face, and it's definitely done a lot to help, but myofascial has made such a huge difference in the structure of my face and feeling of my face from the inside-out, that I can't help but notice how significant it is to my recovery....and I've only had two myofascial sessions so far.
Anywhoo! I feel like it was a blessing or miracle that I met her!!!! I'm so glad she knows what I'm going through since being through something similar but different, and her passion about helping those with facial trauma means a lot! I got that feeling like I had fallen into the hands of the right person at the right time. Divine timing!
The soreness in my face was most noticeable near my ear and back of my jaw when I first started acupuncture in November. However after one session of myofascial release, it has now moved to primarily the front of my face and behind my ears, and the back of my head. I also am not allowed to play my horn at all. Which I think is really good. I can do this! She said that if the muscles are always in contracting-mode, they will remain contracted. We must teach the face to have the natural reflex of relaxing again. The body has "contraction" built into it now, and it takes a lot of repetitive work to reverse this and teach the body to relax instead of contract. That is the aim. So playing my horn would just reinforce contractions in my face, so I need to wait until I'm 100% recovered before trying anything again. And even then, I will have to of course relearn how to play my horn avoiding as much tension as possible.
I think myofascial release would be great for even non-injured/disordered musicians. Like sports medicine, but for musicians; it's good to have a licensed professional release some of that tension from the body from time to time.
I am really grateful to God for bringing these people into my life. My acupuncturists have changed my life and I have so much hope and faith with the relief they've given me in this short amount of time. I will do whatever it takes and be patient with however long it takes to make sure my face is relieved 100% of tension! :)
Moving to Boulder!!!!!
It's official! We're moving from Denver to Boulder!!!!!!!! No more commuting so far! I might not be able to keep up my blog for a while, but again, I'll try to get on here when I can......that is all for now. (Waves!) :-)
Interests: Gray's Anatomy - Fascia of the Cranium and Face
Sometimes
I write facebook posts that I originally meant to post on my embouchure
dystonia blog. This is one of them!...Finally bought the famous medical text.
I'm always printing off excerpts from the fascia of the cranium and face
section. Over two years ago I became extremely fascinated with any information
published on the facial muscles and movement disorders.
Also
I love studying the facial nerve and branches, trigeminal nerve and branches;
including reading articles on bells palsy, trigeminal neuropathy, mental
neuropathy, and peripheral neuropathy. I know it's weird, but ever since I was
diagnosed with focal task-specific embouchure dystonia onset by neuropathy,
I've been drawn to anatomy, neurology, alternative treatment/methods, research
studies, and the various body movement methods too (Feldenkrais, Alexander
Technique, Rolfing, Body Mapping, etc). All that good stuff. What has become of
me?!?! Crazy isn't it.
Tuesday, February 11, 2014
Interview with Percussionist Jean Kaluza
I wanted to share this video that I found a long time ago. I think she does a great job at describing what it's like having musician's dystonia, and what her onset symptoms were like.
Laughter Is Everything!
I originally posted this on 12/29/2012, but the video never worked. So I decide to re-post it. Hopefully works now! I wanted to share something from the past! While on orchestra tour in Chicago in 2009, we were eating at Giordano's, and I was goofing around buzzing through a paper wrapper. The string players around me were trying to figure out how I produced a buzz, so I was teaching them, and we ended up buzzing some excerpts...but they thought I should do a solo excerpt and they'd sing along to Beethoven 5 (we had just finished watching the Chicago Symphony perform Beethoven 5 that night). As you can tell, my horn colleague to the right of me is looking at me like I'm crazy!
Saturday, February 8, 2014
Misleading Fabra Videos
just
copied over my post about this video from facebook to here....
I
don't understand why it says in the caption that the tremors have disappeared
after treatment. Even though this man has come a long ways in recovery, I can
tell he is definitely still having involuntary muscle contractions around his
embouchure at the end of the video. It hurts to watch, because I can see (and
know what it feels like) he's using all of the muscle strength he has to keep
his endurance up and to lock the notes in place.
I
also wish that in these videos they would play something more melodic in the
middle/low range with held notes. Something legato and smooth. Scales and
arpeggios are hard to play while having dystonia, but sometimes playing them
faster makes it easier and doable. However, anything in the middle register
that contains larger interval gaps (especially at a slower tempo), and holding
long notes out are almost impossible. If someone played Pictures at an
Exhibition excerpt, or even held out a long tone on a low G or middle C for 10
seconds, I could tell if they were still having involuntary contractions or
not...I could tell if they were fully recovered or not.
I
always get so much crap for complaining about how Fabra's videos are deceptive
of ones recovery, because it doesn't show all aspects of the persons playing.
But I have also heard similar observations from other instrumentalists as well
who watch the other instrumental recovery posts that he has posted. It's true
he's made progress, and I'm sure he's very happy and hopeful, but I can tell
he's not fully recovered...or as Fabra likes to say "cured." That's
what I dislike/detest about it most, is that he is deceptive in the way he
promotes his so-called "cure" or even suggests that there is a cure
to dystonia...his cure, and that's all. There are many other reasons Fabra rubs
me the wrong way, but I could write a whole book over it. I'm glad he helps
others, but I don't trust his intentions, the way he handles his business, or
how he treats those who don't recovery under his guidance in which he gave
false hope.
Sunday, January 19, 2014
A little bit about Trigeminal Neuralgia, and Peripheral Trauma Nerve Injury
I thought I'd share this link over Trigeminal Neuralgia, and also over Peripheral (Trauma) Nerve Injury Induced Dystonia. Every now and then I receive questions about it, since I primarily talk about embouchure dystonia. I'll come back and explain a little bit more in the near future. This still is an area I want to discuss on my blog, especially about my facial nerve damage.
Sunday, December 29, 2013
More Helpful Links
I
collected even more links that I've been reading through. Some of them I still
have to finish! This also marks my 36th post (I believe?) in 2013. It
is an odd coincidence that I also posted a total of 36 post in 2012. I
definitely did not intend to do that! So here's to another year of my ongoing
blog over embouchure dystonia!!!! I can't believe I've written that much and
recorded so many videos. I am so happy though knowing that my blog helps others
realize they're not as alone as they think they are with this disorder. I've
received support messages, and also love to hear about other people's
experiences with the disorder and how they cope as well. It's always
interesting to find similarities in things that help, but also to see the
differences in observations from one person's personal journey to another. Here
are the links!
Research
and treatment of Musician Movement Disorders at Hannover Music University.
Lee
Andre: http://dystonia-europe.org/wp-content/uploads/2013/08/AndreLeeEdinburgh13_EAAbstract-1.pdf
Rehabilitation
of musician's dystonia through retraining. de Lisle, R:
The
musician’s brain as a model of neuroplasticity.
Thomas
F. Münte, Eckart Altenmüller and Lutz Jäncke:
Dystonia:
Etiology, Clinical Features, and Treatment
edited by Mitchell F. Brin, Cynthia Comella,
Joseph Jankovic:
Neurological
Rehabilitation
edited by Darcy Ann Umphred, Rolando T.
Lazaro, Margaret Roller, Gordon Burton:
Acquisition
and Loss of Skilled Movement in Musicians. Frank R. Wilson:
The
Musician's Hand: A Clinical Guide.
edited by Ian Winspur, Christopher B Wynn
Parry:
Rehabilitation
of the Hand and Upper Extremity, 2-Volume Set: Expert Consult.
By Terri M. Skirven, A. Lee Osterman, Jane
Fedorczyk, Peter C. Amadio:
Treatment
of Musician’s Dystonia with the Use of Ultrasound-Guided Injection of Botox: An
Interesting Case Report. Rajat Goel:
Dysfunctional
neural activity linked to musician’s dystonia. Danny
Rose: http://www.medicalobserver.com.au/news/dysfunctional-neural-activity-linked-to-musicians-dystonia
The
pathophysiological basis of dystonias. Xandra O. Breakefield, Anne J. Blood,
Yuqing Li, Mark Hallett, Phyllis I. Hanson, and David G. Standaert:
https://fysio.dk/Upload/KursUdd/Kursusmateriale/Tema%20tonus,%20bev%C3%A6gelse,%20b%C3%B8rn/HS%20-%20Breakfield%20Pathophysiology%20of%20Dystonia.pdf
https://fysio.dk/Upload/KursUdd/Kursusmateriale/Tema%20tonus,%20bev%C3%A6gelse,%20b%C3%B8rn/HS%20-%20Breakfield%20Pathophysiology%20of%20Dystonia.pdf
Focal
hand dystonia – a disorder of neuroplasticity? Joseph Classen:
What
is Dystonia? Contributed by Prof. Alberto Albanese, MD
Professor
of Neurology Istituto Neurologico C. Besta Milano, Italy:
Understanding
a Career Killer: Focal Dystonia. Brian Wise:
The
Performing Arts Clinic of Brigham:
CC
Grand Rounds: (1) Musician's Dystonia: When the Music Stops. (Video)
Music on the brain. Philip: http//www.nature.com/news/2010/101005/full/news.2010.510.html
Saturday, December 28, 2013
Acupuncture Update and Observations!
So far things have been going great, and I have a lot to say. Acupuncture has left me with some interesting experiences and observations!
The first meeting I had I played my horn for my acupuncturist, and (forgive me for forgetting the correct terminology) she said the type of movement in my face is sometimes referred to as windy or winding or wind. She also noticed how the right side of my face is more tense than my left. My muscles on the right side were especially tight around my jaw and pulling my lower lip muscle to the side. She said it's probably been effecting part of my playing too. I couldn't agree more! I explained how that lower lip was causing me a lot of problems, especially in my mid-to-low range my lip quivers or spasms, but had gotten better over time with re-training.
Anywhoo, the first session we did some cupping along my back. She said I must have a lot of tension in my right shoulder because it turned bright red almost immediately and it hurt. But after she was done it felt good! Then I had a light acupuncture session, had some facial massage, and a pain-relieving type of medication applied to my face. I was instructed that I am only allowed to play 15 minutes once a week, and to ice-pack/heat-pack afterwards, along with stretches and massage.
However, the rest of the following week after my first session I had the most intense pain in my face accompanied by a headache...even though the first session was light. It lasted a couple days and I had to massage my face a lot, put on the pain relief medicine along with heat-packing/ice-packing as instructed. I felt like there was a nerve on the inside of my cheeks pulsating. It wasn't TMJ either like some people think because I've had a dentist confirm that it is not the source of my problems.
When I went in the first time the slight dullness was there in my cheek (near the buccinator muscles) and in my upper lip. But after the session ended it had moved further back near my ear, and on the top of my cheek bone, but instead of feeling dullness, I felt a soreness that developed into that intense pain. I put the pictures below showing where the soreness and sometimes throbbing felt the most intense and how it moved to different areas after every session. The remaining sessions down the road where not nearly as painful, and I felt more like soreness accompanied by blood trying to flow through my face, yet some areas it felt good and the other areas it just felt sore. I found it interesting that after the pain receded, there was much improvement in the feeling of my face and gradual physical appearances/changes.
The black circles represent the specific points where I felt soreness or a blockage before or after the sessions.
Before session one: dullness in cheek area, upper lip, and a ton of tension the chin.
1(A)

After session 3: Soreness moved to side of chin/jaw closest to chin, and chin area only.
After session 4: Soreness moved to almost all of the right side of upper lip...especially near the base or bottom of the nose where the lip and nose meet, and also soreness along the lines that appear when you smile that run from the lip to the corners of the nose and along the nose.
After session 5: This was interesting because during the session it was the first time we used the electric currents/stimulation on my face. Soreness afterwards primarily existed in the whole muscle area on the underside of my chin or jaw and ran all the way down the muscles on the front of my neck, and also along the left side/back side of my neck. There was slight soreness in the muscles on my forehead....but I didn't have a headache or anything. Then very slight soreness in the side of my cheek but this time a much smaller area and on-off again.
It was during this previous session that my acupuncturist also brought up the noticeable difference or position of my lower lip when I spoke. It looked less abnormal. She said it looked like my right side wasn't pulling that muscle back as much as it was before. I was shocked that she said this because this is one the things my family members and friends noticed about me in the past; that my lower lip was positioned abnormally when I spoke ...which I had at the time thought it was just due to aging. I told her that I too noticed a change in my chin area, and in my speech too. It was easier for my jaw to move, and I felt a letting-go of tension type of feeling going on in my face...but it's not all at once...it's as if the blood circulation is trying to break through all the channels and blockages, and some are opening up, and some still are resistant...and I think that's what's causing the soreness. There's areas of my face that feel like there's changes going on, like there is blood flow that wasn't as vital-life of a type of feeling as before.
Anywhoo, my next session is coming up this Tuesday on New Years Eve! I'm very excited!!! Despite other people worrying that any additional signs of pain to my face are not good, I can only say that the soreness has only been temporary, and I believe it is necessary when it comes to relieving tension. Sometimes relieving tension in the body is painful...I'm not saying it should be excruciating, but that I believe it is a vital step in the process of recovery, especially when after the soreness goes away, my face feels so much different and less tense than I have felt in a very long time. Even the symptoms of dystonia have lessened, and some symptoms act differently than they did before because the way my embouchure functions or the way the muscles function has changed.
Friday, December 27, 2013
Finding Strength
I
refuse to believe there is no possibility or chance of overcoming embouchure
dystonia. There is nothing that can waiver my willpower, determination, and
patience. No one can stand in my way. I know without a doubt that something
once so natural cannot be lost forever when my muscles still possess natural
abilities outside of playing. It is a paradoxical mystery as to why only very
specific movements trigger it, yet the muscles can still function naturally
when at rest. There is a way to return function or eliminate the triggers.
I
don't know how I know, but I know THERE IS a way to reverse it. I know it in my
gut and soul that this observation of contradictory therein lies an answer
hidden somewhere, and that's what gives me strength. It's ultimate faith that
what is considered impossible is possible due to that extra space of grey area
and a question mark lingering.
I
refuse to believe the only thing that exists is a dead end with no hope when
the answer is at the tip of ones tongue constantly, and hints at the
possibility of freedom from the disorder through glimpses or moments of
normalcy after so much hard work and effort accomplished.
Most
people who are diagnosed with FTSHD (Hand Dystonia) or FTSED (Embouchure
Dystonia) ask, "How could my abilities degrade to such a state when I use
to be able to play so naturally with ease and nothing wrong?" when the question should be, "Why should
I believe my dystonia is irreversible when normal function still exists in my
muscles outside of playing?" Not all is lost when muscle function still
exists.
If
the possibility of all muscle function is to be completely thrown out the
window into the realm of never returning, then I would not be able to use all
of my muscle capabilities in my face; I would not be able to eat, not be able
to speak, not be able to form a natural smile, not be able to whistle, not be
able to do other related tasks or parallel motions. Yet, I still can perform
other tasks with the muscles and movement in my face...so why is it not
possible to restore function when it comes to horn playing? As long as there is
that grey area, as long as my muscles function normally outside of playing, not
all is lost...there has to be...there MUST be...there IS a way of restoring normalcy.
I just know it! I refuse to let my strength and faith waiver!!
Saturday, December 7, 2013
If Musician's Dystonia Were Treated Like A Mental Illness.....Oh Wait...It Already Is.
This little short comic jokes about what it would be like if a physical illness or trauma were treated like a mental illness. This reminded me of how dystonia is often treated like a mental illness or something ridiculous.
Thank you to http://imgur.com/CWFTYoV for this awesome comic! :)
Wednesday, December 4, 2013
More Useful Links on Musician's Dystonia and Other Related Interests
There's not enough room on the side of my blog page, so I'm going to start grouping links into separate blogs titled: Links Of Interest / More Helpful Links.
Sensory Mapping of Lip Representation in Brass Musicians with Embouchure Dystonia. By Hirata, Schulz, Altenmuller, Elbert, and Pantev. (PDF)
http://www.immm.hmtm-hannover.de/uploads/media/Hirata_et_al.__2004__Sensory_mapping_of_lip_representation_in_brass.pdf
The Challenge of Diagnosing Hand Dystonia. By J. Rosset-Llobet (PDF)
http://www.tmslab.org/publications/066.pdf
Leon Fleisher: Two Hands (video)
http://vimeo.com/6684412
Sex Prevalence of Focal Dystonia (PDF)
http://jnnp.bmj.com/content/60/2/204.full.pdf
Trigger Points Focal Dystonia (book excerpt)
http://books.google.com.mx/books?id=FrEmzwNOG_IC&pg=PA168&lpg=PA168&dq=trigger+points+focal+dystonia&source=bl&ots=BRrzto52bF&sig=w3Q2uNSTttU_Gl2ImB1uNr0pRso&hl=es-419&sa=X&ei=ooWwUMbCEoLm2QWpjoFo&ved=0CC4Q6AEwAA#v=onepage&q=trigger%20points%20focal%20dystonia&f=false
Joseph Meidt Xray Movie of Trumpet and Horn Player Embouchure.
http://www.youtube.com/watch?v=tpOwuAMqFTA
Dystonia.org.uk - another good review of what musician's dystonia is.
http://www.dystonia.org.uk/index.php/about-dystonia/types-of-dystonia/focal-hand-dystonia/musicians-dystonia-musicians-cramp
Another site that explains Musician's Dystonia well.
http://www.fcart.org/distonia/english/
Axial Musculature
http://quizlet.com/4040527/axial-musculature-flash-cards/
Gray's Anatomy
http://prohealthsys.com/site/anatomy/grays-anatomy/
What Are Lips For?
http://www.theatlantic.com/daily-dish/archive/2008/02/what-are-lips-for/220420/
On Traumatic Injuries to the Lip and/or Tongue.
http://www.simplestepsdental.com/SS/ihtSS/r.==/st.32219/t.32774/pr.3.html
About Peripheral Nerve Damage.
http://en.wikipedia.org/wiki/Peripheral_nerve_injury#Types_of_Nerve_Damage
About Hemifacial Spasm. By Dr. Azizzadeh.
http://www.facialparalysisinstitute.com/31/hemifacial_spasm.html
About Different Types Of Muscle Strains
http://www.momsteam.com/sports/track-field/safety/muscle-tendon-strains-types-classification-treatment
About TMJ Upper/Lower Splints.
http://www.healthboards.com/boards/tmj-disorder-temporomandibular-joint/903582-lower-splint-vs-upper-splint.html
Fibromyalgia Solved: A pathology, not in the mind. By Paul Montjoy.
http://communities.washingtontimes.com/neighborhood/steps-authentic-happiness-positive-psychology/2013/oct/17/fibromyalgia-solved-pathology-not-mind/#.Up6IWhIGPgc.facebook
What Your Doctor Will NOT Tell You About Fibromyalgia. By Dr. Paul St. Amand.
http://www.amazon.com/What-Your-Doctor-About-Fibromyalgia/dp/B001Q3M66G
On Myofascial Pain: Ropes and Lumps in muscles.
http://forums.prohealth.com/forums/index.php?threads/lumps-and-rope-like-muscles.89081/
About Piano Performance-related Injuries and the Taubman Approach.
http://www.wellbalancedpianist.com/pianoinjury.htm
and ...http://www.wellbalancedpianist.com/dystoniatestimonials.htm
On Feldenkrais Movement Therapy.
http://openatm.org/
Jerald Harscher's website: The Poised Guitarist (Very helpful rehabilitator of guitarist with hand dystonia).
http://thepoisedguitarist.com/
Greg Fellow's YouTube Channel - Spasmodic Dysphonia (vocal chord dystonia)
http://www.youtube.com/user/GregFellowsSD
Billy McLaughlin (guitar) - Advocate for Musician Dystonia Awareness. Some information on his trials and tribulations with Hand Dystonia.
http://www.billymclaughlin.com/dystonia/
Steven Leung - Violinist Recovering from Dystonia
http://www.violinist.com/discussion/response.cfm?ID=9051
Paula Brusky, Ph.D - Advocate of Musician Injury Prevention, and Music and Medicine.
http://paulabrusky.com/about
On Schools of Music Psychology
http://musicpsychology.co.uk/studying-music-psychology/
Flutist Jen Cluff Talks about Embouchure Dystonia Observation of other Dystonia Flutist. (About a quarter ways down into the blog you'll see some neat observations)
http://jennifercluff.blogspot.com/2007/08/seeing-again-mcghee-cds-wye-nfa-lip.html
The Truth About Piano Lessons (To Parents of Piano Students). By Karen Berger
http://musicalresources.blogspot.com/2011/07/truth-about-piano-lessons.html
How It's Made: French Horn. (I just had to throw a fun one in here!)
https://www.youtube.com/watch?v=sTvYxP9tjQs&list=PLgkm6q2GGDItRpEUoPMnZAfn9XRT94E1Z
Sensory Mapping of Lip Representation in Brass Musicians with Embouchure Dystonia. By Hirata, Schulz, Altenmuller, Elbert, and Pantev. (PDF)
http://www.immm.hmtm-hannover.de/uploads/media/Hirata_et_al.__2004__Sensory_mapping_of_lip_representation_in_brass.pdf
The Challenge of Diagnosing Hand Dystonia. By J. Rosset-Llobet (PDF)
http://www.tmslab.org/publications/066.pdf
Leon Fleisher: Two Hands (video)
http://vimeo.com/6684412
Sex Prevalence of Focal Dystonia (PDF)
http://jnnp.bmj.com/content/60/2/204.full.pdf
Trigger Points Focal Dystonia (book excerpt)
http://books.google.com.mx/books?id=FrEmzwNOG_IC&pg=PA168&lpg=PA168&dq=trigger+points+focal+dystonia&source=bl&ots=BRrzto52bF&sig=w3Q2uNSTttU_Gl2ImB1uNr0pRso&hl=es-419&sa=X&ei=ooWwUMbCEoLm2QWpjoFo&ved=0CC4Q6AEwAA#v=onepage&q=trigger%20points%20focal%20dystonia&f=false
Joseph Meidt Xray Movie of Trumpet and Horn Player Embouchure.
http://www.youtube.com/watch?v=tpOwuAMqFTA
Dystonia.org.uk - another good review of what musician's dystonia is.
http://www.dystonia.org.uk/index.php/about-dystonia/types-of-dystonia/focal-hand-dystonia/musicians-dystonia-musicians-cramp
Another site that explains Musician's Dystonia well.
http://www.fcart.org/distonia/english/
Axial Musculature
http://quizlet.com/4040527/axial-musculature-flash-cards/
Gray's Anatomy
http://prohealthsys.com/site/anatomy/grays-anatomy/
What Are Lips For?
http://www.theatlantic.com/daily-dish/archive/2008/02/what-are-lips-for/220420/
On Traumatic Injuries to the Lip and/or Tongue.
http://www.simplestepsdental.com/SS/ihtSS/r.==/st.32219/t.32774/pr.3.html
About Peripheral Nerve Damage.
http://en.wikipedia.org/wiki/Peripheral_nerve_injury#Types_of_Nerve_Damage
About Hemifacial Spasm. By Dr. Azizzadeh.
http://www.facialparalysisinstitute.com/31/hemifacial_spasm.html
About Different Types Of Muscle Strains
http://www.momsteam.com/sports/track-field/safety/muscle-tendon-strains-types-classification-treatment
About TMJ Upper/Lower Splints.
http://www.healthboards.com/boards/tmj-disorder-temporomandibular-joint/903582-lower-splint-vs-upper-splint.html
Fibromyalgia Solved: A pathology, not in the mind. By Paul Montjoy.
http://communities.washingtontimes.com/neighborhood/steps-authentic-happiness-positive-psychology/2013/oct/17/fibromyalgia-solved-pathology-not-mind/#.Up6IWhIGPgc.facebook
What Your Doctor Will NOT Tell You About Fibromyalgia. By Dr. Paul St. Amand.
http://www.amazon.com/What-Your-Doctor-About-Fibromyalgia/dp/B001Q3M66G
On Myofascial Pain: Ropes and Lumps in muscles.
http://forums.prohealth.com/forums/index.php?threads/lumps-and-rope-like-muscles.89081/
About Piano Performance-related Injuries and the Taubman Approach.
http://www.wellbalancedpianist.com/pianoinjury.htm
and ...http://www.wellbalancedpianist.com/dystoniatestimonials.htm
On Feldenkrais Movement Therapy.
http://openatm.org/
Jerald Harscher's website: The Poised Guitarist (Very helpful rehabilitator of guitarist with hand dystonia).
http://thepoisedguitarist.com/
Greg Fellow's YouTube Channel - Spasmodic Dysphonia (vocal chord dystonia)
http://www.youtube.com/user/GregFellowsSD
Billy McLaughlin (guitar) - Advocate for Musician Dystonia Awareness. Some information on his trials and tribulations with Hand Dystonia.
http://www.billymclaughlin.com/dystonia/
Steven Leung - Violinist Recovering from Dystonia
http://www.violinist.com/discussion/response.cfm?ID=9051
Paula Brusky, Ph.D - Advocate of Musician Injury Prevention, and Music and Medicine.
http://paulabrusky.com/about
On Schools of Music Psychology
http://musicpsychology.co.uk/studying-music-psychology/
Flutist Jen Cluff Talks about Embouchure Dystonia Observation of other Dystonia Flutist. (About a quarter ways down into the blog you'll see some neat observations)
http://jennifercluff.blogspot.com/2007/08/seeing-again-mcghee-cds-wye-nfa-lip.html
The Truth About Piano Lessons (To Parents of Piano Students). By Karen Berger
http://musicalresources.blogspot.com/2011/07/truth-about-piano-lessons.html
How It's Made: French Horn. (I just had to throw a fun one in here!)
https://www.youtube.com/watch?v=sTvYxP9tjQs&list=PLgkm6q2GGDItRpEUoPMnZAfn9XRT94E1Z
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