Thursday, December 29, 2016

Goodbye ESC



Sorry I haven't had time to update my blog in forever. This is why....I've been working like crazy to balance all the areas of my life; especially work/finances. I currently work for El Sistema Colorado, American Music School, Taylor Robinson Music, and I just got a sub-license. All of this to keep my head above water this year.

All I can say is that some things in life are inevitable. You try your hardest to avoid it, but even when working with a team to prevent things from ending, sometimes they do, nonetheless. 2016 has been tough. Last year in January of 2016 I received the news that two of my co-teachers who lead the 4th & 5th grade brass and woodwinds/band class with me were being laid off. That was tough because all of a sudden I was alone three days before the first day of classes started and feeling like I had lost a great team. Part of why I love El Sistema Colorado is because we co-teach most things. It's so much more effective and the students feel like they are surrounded by a family of teachers dedicated to them. It was hard, but I made it.

On top of that we ended our year a month early. Coming into this year I received a phone call in the August of 2016 asking if I would like to continue with ESC as a teacher, but only offered 16 hours a week (I had 32 last year) since there wasn't much funding, no lesson planning time paid for, no instrument maintenance time, no staff meetings, no core-group/nucleo meetings, no pre-concert planning meetings, and strict time on hour limits, no instrument repairs, teachers could only work a certain amount of hours at a concert at the beginning of the year, no paid-out time ...no accrued vacation hours, no benefits this year...whereas last year we had all of this available. The pay rate would change depending on what us teachers where doing; one pay rate for lead teaching, a different one for assisting, another for meetings and concerts. I was also told that there may be a possibility that the brass & woodwinds program I teach most likely would be cut in January 2017.

I said yes because despite how gloomy it sounds, I love this organization so much, and it is my livelihood! I wouldn't want to be anywhere else. I ended up with more hours due to another teacher declining a position, so I filled it and went up to 21 hours. I also started teaching private music lessons on the weekend to fill in more hours.

Right away we had a lot of teachers leave. Most of them had excuses such as moving, getting a full-time teaching job elsewhere, or too many gigs, a lot of them were actually upset with the way things were heading, or scared of getting laid off. I worked hard since August to try to get another part-time job encase things got worse. I even advocated to keep the brass & woodwinds program going at Garden Place Academy.

In November 2016 we received an email asking about ideas for next year; example - should we move to salary positions, should we hire all teachers on as full-time in order to receive benefits, should we move all after-school programs to one hub?, etc. We received the same questions last year as well...so it seemed that maybe things were getting better since they were asking us this. That's at least what I assumed.

But then early December 2016 we received a letter saying that our after-school programming at all three schools was ending two and half weeks early due to not enough funding. As teachers we vented to our lead teaching artists about how we didn't feel included in anything. Why can't we fund-raise as teachers? Why is it just left up to administration or the board? Why can't we be included on information about the organizations finances? Why are we left out until it's too late to do anything? Why are we told to promote matching grants a day before they are due? or just sent a link to Colorado Gives in order to try to fund raise? Isn't there more we can do as teachers? If someone would just help us organize a fundraiser for our nonprofit, we'd do it, even if it meant not getting paid. I'd work overtime on no pay just to get the organization back running. We all would if it came down to it.

Finally we got a little bit of answers; that our organization's start-up money funding was winding down, and that it generally only covers about 4 years, and we are into our 4th year of programming. On top of that our organization grew too big in a short time. We expanded to serving three schools in Denver. We're one of the best El Sistema organizations! We also didn't have an executive director for over a year, and they had to rebuild networks and partnerships, etc.

The administration and board worked tirelessly to send out letters to donors to get funding, etc. At least that's what we were told. But still, all of us teachers feel like things are always so ambiguous. I understand that keeping a nonprofit afloat is not easy, but communication has always been an issue. Every survey we filled out that asked what our organization could improve on  - at the top was communication.

Then the worst news came two days after Christmas (Yes, literally yesterday!)  my boss called me and informed me that the board has decided to end El Sistema Colorado programming on January 31st due to lack of funding. In-school programming starts January 9th, after-school January 16th, and then we end the 31st. Literally only 3 weeks, and we're done for the year .

It hasn't really hit me yet. Neither any of the LTA's saw it coming either and it's a huge blow to all of us. Every single one of us has to drop things and find new work if we haven't already got a second job lined up. There's nothing like being laid-off three weeks into school. I was told that the board hasn't approved up ending in January 31st quite yet, and that they are trying to push the funding out further through February at the latest. They are trying to push whatever money they have left to Bruce Randolph High School since it needs the most. So I was asked if I would consider staying on board for after-school programming there if that's what ends up happening. I said yes.

I luckily just received my Sub-Authorization through the Colorado Department of Education. So hopefully I can pick up subbing hours. Also waiting on to hear if I get hired for a part-time band director assistant position I applied for not long ago. I also opened up more of my private lesson schedule hours.

I'm not writing this in anger, but in sadness and disappointment. I love ESC and we are all hoping and praying that the board or administration, or whoever is in charge (now that they let go of the executive director as well) raises enough money to start El Sistema Colorado programming again in August of 2017. For now, we wait and see what happens. It's more devastating having to say goodbye to all the students and explain to them why they might not see us again. It's really hard. But if asked to go through this again, I'd say yes. So many of us would because we put in all the blood, sweat, and tears; our all into making this program great.

I posted the photo of a broken bridge because it's how I always am left feeling when a path I expected to be on for a long time comes to a short end. I'm not sure what's ahead, and as sad as it sounds, I'm actually use to it, so I feel I have the strength to move forward. As I said before, rising from the ashes is what I do best. Music is my purpose and calling, and no matter what happens, I will find a way to continue on my music path in one way or another. It's who I am, and who I'll always be...a musician who knows how to persevere despite all setbacks.

Sunday, October 23, 2016

October: Monthly Shared Articles



First article is titled: "What DOES it take to be a Professional Orchestra Musician?" 
This blog post also points out something that is a significantly huge part of preparing for focal dystonia rehabilitation! Changing your mindset from a performance technique mindset to an exploratory mindset full of love, creativity, and adaptability. 

Everything taught to you haas to go out the window. Foget it all (i.e. all knowledge and practice of technique, embouchure formation, setup, proper breathing...). Literally have to deprogram everything so you can start over and start physical rehabilitation from a healthy mental place. Not easy because musicians instruments and reputation are woven tightly into their identity.

What a great article! If you're like others who lean more towards this side, do whatever it takes to regain even a little ownership of your own voice/sound and expression in music. This is why guitar has always been my secondary instrument. It allowed me to feel creative and free of many limitations at times, or when demands got tough. 


A glimpse at part of the article:
 "We get similar effects in blind people who read Braille with several fingers at once: they develop a single representation of all these fingers on the somatosensory cortex, but are not able to determine which part of the information received in the brain comes from which finger. Psychologist Thomas Elbert further points out a parallel of this in all of us: our toes are generally stimulated only simultaneously as we walk, and most of us have trouble telling which of the middle toes has been touched upon application of a light pressure stimulus. Indeed, our toes are not individually represented on the somatosensory cortex as our fingers are."

"Dr Merzenich of the University of California San Francisco calls focal dystonia of the hand a “learning-based catastrophe” and a “failure of the brain’s learning processes”. Consequently, he focuses on developing techniques that will help to “re-normalize the learning system”, in helping to newly distinguish the areas on the somatosensory cortex that have become blurred. Although this approach is very new, Merzenich claims some good results in training children with linguistic impairments, such as dyslexia, which show similar blurring of representations in the brain."

Friday, October 7, 2016

More Alternative Medicine/Therapies (Part 3): Body Movement Awareness Methods (Somatics), Modifications, and Musical Exercises for Focal Embouchure Dystonia

(PART 3) External Modifications to Playing

A couple of external modifications have helped me with my dystonia. As I progressed the modifications changed over time. Here are some examples...
  • Playing with the bell on the leg or off the leg...
    As a horn player (pre-embouchure dystonia) I had always played off my leg. But with embouchure dystonia, it was the complete opposite. I started rehabilitating on my mouthpiece only, and later on in the processes moved onto my horn and found that playing on my leg made things significantly easier. It was as if I had more control and my embouchure didn't have to adjust to any slight external movement that I would have had to deal with if I played off the leg. As I improved over time and regained more abilities, I found that switching back and forth between playing on the leg and off the leg was both helpful, but it just depended on the way my embouchure was feeling that day. With embouchure dystonia, you're highly sensitive to what helps you and what doesn't (even if it is just the slightest tiniest modification).

    When I started playing on the leg, it formed a type of  crutch for me. That's what all these external modifications are...everything is a crutch (i.e. something you rely on or lean on for support) in the beginning of rehabilitation. As I regained more control of my embouchure, I didn't need the crutch as often, so I started switching back and forth between playing on the leg and off the leg depending on how my embouchure felt. Some days it felt easier to play off the leg, and other days I couldn't play at all unless I balanced my horn on my leg.
  • Using a mouthpiece with a good amount of back-pressure...
    When I first started rehabilitating, I didn't even play my horn. I focused on mouthpiece buzzing ONLY for several months, maybe even a year? and NO tonguing, and NO breath control. In one of my previous posts I wrote about how I basically had to deprogram that feeling of automatic "playing-mode" because once my body was aware that I was physically playing, it completely tensed up or locked up. Therefore, I had to forget about everything and just focus on breathing out normally (without thinking about it and without preparing my lungs through breathing exercises...just let it all go!), and also focusing on just buzzing through very loose lips, even if it meant frowning or scrunching the chin...just playing with the flabbiest most loose lips possible. But sometimes my muscles needed to stretch and squeeze...so I started doing stretches, because sometimes I had to give into the tension I felt and just squeeze my facial muscles into contorted expressions just to relieve the tension...kind of like trying to get rid of a huge muscle cramp. So later on I realized how important it was to do facial muscle stretches first, and then focus on flabby lips in buzzing.

    About needing a mouthpiece with back-pressure. It was necessary for me to play on a mouthpiece that provided a little more resistance than normal, because again, it provided a crutch for me. It was much easier for me to buzz and get a sound out. I had less spasms and more control. It may have not been that much more control given, but it was significantly noticeably more efficient than playing on a free-blowing mouthpiece.

    Lucinda Lewis does something very similar called blocked-buzzing. This is the best analogy I can think of to describe why the resistance or back-pressure is necessary in rehabilitation. She said that one day when blowing into a soda bottle and looking into a mirror, she realized that because the air wasn't being allowed out of the bottle, it resulted in air resistance against the lips. This air resistance made her embouchure muscles form into a natural embouchure because there was no room for the muscles to relax, they had to fight the air resistance.

    It's like jumping on a trampoline. If you are jumping on flat ground, your leg muscles have to carry a lot of your weight, and it takes a great deal more muscle strength to jump on flat ground and it's a lot harder on your joints. But if you are on a trampoline, you are still using your leg muscles to bounce in the air, but it is significantly easier because the trampoline-springs provide that extra back-pressure or support. You push your legs against the trampoline mat and it pushes back, and it's the trampoline's resistance that shoots you off into the air. It's the same with mouthpiece back-pressure! You push up against the resistance and it helps by pushing back, and it's as if your embouchure muscles don't have to try that hard to function.

    This only works in the case of embouchure dystonia, because of course if you don't have embouchure dystonia then more back-pressure or resistance just gets in the way. You feel the opposite; like you're trudging through mud and having to work harder to play higher and louder because there is no flexibility. But with embouchure dystonia, we are just focused on trying to hold onto a note without our muscles giving out, spasming, or fighting back. So the back-pressure of the mouthpiece helps us hold on to the note(s) for a split second.

    Later on when I didn't need my heavy back-pressured mouthpiece as much, I kept switching back and forth between one that was less resistant and the one that was more resistant. It's like learning how to walk again. Sometimes you get to a point where you don't always need a crutch to walk, but sometimes you do! Some days you feel great, and other days you fall back on your crutches because you're exhausted or the stamina just isn't there from working so hard.

    Eventually I reached a point where I felt my muscles actually start to work or that feeling of "kicking in". If that makes sense? I started to see my muscles try to form a stable embouchure without me even trying. It was never forced. But when it did happen, it grabbed my attention.
  • Using your right hand to hold your mouthpiece and closer to your mouth when buzzing...
    As a horn player I'm so use to holding my left hand up when I play, that actually buzzing with the mouthpiece in my right hand helped me lessen that "automatic horn-playing mode" that I was working so hard to get out of my body. In a way it is kind of like a sensory trick (neurologist use sensory tricks to help trick the brain into thinking that it is doing something different). It may not seem like it makes a huge difference at first, but over time I found that buzzing out of my right hand helped lessen my spasms.

    Also holding the mouthpiece around the cup or closer to the rim with my fingers/hand allowed me to have more control. Usually we are taught by our teachers to hold the mouthpiece with only two fingers near the end of the shank so that way we use more of our embouchure muscles and air to control the buzz, rather than relying on pressure. But with dystonia, the opposite is necessary....we need to help our embouchure out by holding the mouthpiece in a secure way. If we try to buzz while the mouthpiece is loosely set upon our lips, it's a million times harder/worse and brings out the spasms and dystonia symptoms even more. At least this was the case for me! So I absolutely had to do whatever was most comfortable for me and allowed me to work with my dystonia symptoms....none of the traditional methods of playing or pedagogy could help me...I really had to completely ignore or unlearn every so called "good" habit ingrained, and instead had to trust my body and allow it to tell me what to do. I had to be highly in tune with my dystonia symptoms and how they functioned.

    Again, as I improved, the less I needed the sensory tricks and crutches to help me play. But these steps were absolutely necessary for my recovery when my dystonia symptoms were at their worst.
    ....same goes for when transferring over to your horn. Try playing your horn with the right hand, and no use of tongue! 
  • Playing Stop-Muted
    Playing with a straight mute or practice mute in the bell made my symptoms worse. But stop-muting the bell with my hand actually helped. I don't know why the sensation of the stop-muting helped, but I believe it helped physically and also with my sound. I always sounded much better stop-muted, so I practiced this way about half-way through the second year of retraining.
  • Playing With or Without a Mirror
    Before I was diagnosed, I was constantly looking in the mirror at my embouchure when I practiced because it looked as if all of my muscles were melting or becoming distorted. I became too obsessed with trying to correct my dysfunctional embouchure at first; by trying to flatten my chin and straighten my corners, but nothing was working.
    So throughout the first part of retraining after diagnosis, I had to focus more on feeling things, rather than looking at my embouchure in the mirror. However, I eventually did need the mirror, because it did help me become more aware of what my symptoms were; I could see where every little twitch/spasm occurred and on which note. I could see when the left side of my lower lip started to droop, etc.
    It was important to use a mirror, but in moderation, and only when I became less analytical about trying to "fix" my embouchure. It wasn't until I started to focus more on "feel" that I could start using the mirror more often to observe my symptoms.
  • Playing other instruments
    At first this didn't help me. Actually it didn't help for quite a few years. But after regaining some abilities. playing other instruments started to help. They helped condition my muscles in a different area or way, and this allowed me to transfer those adapted muscles and use to my horn playing.
  • Changing Mouthpiece Angle
    Constantly changing my mouthpiece angle to find a more comfortable position helped greatly. Even though the angle and position of my mouthpiece changed almost every 2 minutes or every day, it still helped to experiment and seek out a spot on my lips and angle that helped me regain more of a grasp on my notes.
  • Sensory Work
    This should actually be logged under body-movement methods, because it deals more with retraining your sensation  - sensory tricks or body mapping.

    Practicing using non-focused air is key! If you can get either a small windmill to blow on, or a feather, this will help. Practice blowing with loose, wide, and unfocused air coming out of your lips. Think of the type of air you huff and puff when angry....if your lips and your cheek/facial muscles are truly loose, then you should feel the air fill up both cheeks a little, or the air will fill up and puff out near the corners of your lips, or even lower near your chin.

    Practice putting things up to your lips; like a spoon touching the surface of your lips, or practice blowing through a really wide straw (like the ones that they give you for bubble tea). It sounds silly, but it's a way of desensitizing your body and brain from constant "mouthpiece/automatic horn playing mode." When your brain realizes that not everything you put up to your lips is a horn, it helps. Because that's basically what it is doing. I had so many problems with drinking from a water bottle or even a coffee cup with a cap on it, just because my spasms would kick in as if I were playing the horn.

    Holding bubbles of air in my cheeks and mouth helped a lot to (just don't fill them up too much because it can actually open or damage a gland in your cheek, so be careful). 
There weren't too many external modifications, but the ones that I listed helped me. The exercises that I will write about next are what helped me tame my dystonia symptoms the most.

Thursday, October 6, 2016

First Orchestra Concert in Six Years!

I had the honor of performing with the Longmont Symphony Orchestra in Colorado this last weekend. I took a risk and said yes to subbing for the 4th horn player, thinking that it would be doable with a couple easy pieces and one large more difficult piece.

But boy was I wrong about the programming! The concert included Pines of Rome, Enigma Variations, Daphnis & Chloe, and Strauss's Four Last Songs. There was transpositions in bass clef and old notation in some of the pieces and a tiny solo for 4th horn.

I had never been much of a low horn player, even before dystonia, I primarily held principal positions. It was too late to turn back now. Plus I had worked so hard and looked forward to such an opportunity for so long! I decided to prepare for it and hope for the best come rehearsal time. We only got two rehearsals and then the concert.

I was surprised that things went so well! I was so nervous about my dystonia kicking in during the long stretches of held notes throughout all of Strauss. I was scared that either spasms would violently through me off the notes (i.e. ending them abruptly), or I wouldn't have enough grasp on the notes to adjust my intonation if needed to (combined with using my right hand in the bell). But all the pieces turned out to be totally doable thanks to my mouthpiece that made things so much more comfortable.

I have been playing trumpet on a daily basis with my students. I have one class of literally 10 beginner trumpet players this year. For over a year now I've been having to play so many different instruments due to teaching; mainly flute, clarinet, oboe, trumpet, and trombone. On all of them I started out shaky, but my dystonia symptoms have receded a great deal over the year.

Trumpet is the one instrument I've spent the most amount of time playing. My dystonia symptoms are actually significantly less severe on trumpet than any of the other brass instruments. Luckily I own a french horn mouthpiece designed by a trumpet player (you can totally tell if you ever get the chance to look at it) and it looks like a trumpet mouthpiece almost. The rim is contoured like a trumpets, the body is funnel-shaped, but then it is a heavy and thick/dense mouthpiece. Probably as heavy as a trombone mouthpiece.

The feeling of the trumpet rim (it's A LOT of RIM!) on a horn mouthpiece has done a bit of sensory trick for me and my symptoms don't kick in as often. I can't play very much in the high range, but that's due to the mouthpiece and it's rim contour and thickness. However, my notes are stable.

Enough about my mouthpiece! Here are some photos from my first rehearsal. Both rehearsals and the concert went smoothly. I definitely needed that feeling of playing in an orchestra again. It was way over due. I took a risk because I knew I could do it, even if it took a lot of physical effort. I was very proud of how much progress I've made and that I'm able to perform even the slightest bit or every blue moon again. There have been so many days, months, and years missing playing with an orchestra, so even having the chance to relive it once again, just once, is a dream come true!




October Link of Interest: Observing Dystonia Blog by Andrée Martin

Andrée Martin, flute professor at Columbus State University, writes a blog called Observing Dystonia and documents her FTSHD (Focal Task-Specific Hand Dystonia) retraining. Recently Andree posted a blog I found interesting on progress through the use of dowels, which I posted below. She is actually trained in Alexander Technique and Feldenkrais (http://summerflute.org/andreemartin/) which both dwell in body-mapping techniques.

This was such a great read, and I'm very happy to see a professional musician sharing their journey through recovery!!! It gives many hope and comfort knowing they are not alone throughout their own obstacles in overcoming this disorder. Thank you Andree!

Saturday, August 27, 2016

Saturday, July 2, 2016

Video: Collapsed and Puckered Embouchure with Dystonia

Haven't recorded a video in a really long time! Well, after a long duration of time of having very few symptoms, I of course get a day full of intense relapse symptoms. So I thought I'd record my relapse and also show what the symptoms look like on both a puckered, and on a collapsed embouchure.

So many people think that in order to overcome embouchure dystonia it requires a "fixing" of the embouchure setup by either puckering more, or loosening the embouchure more...and although less tension is key, it isn't the answer to overcoming embouchure dystonia. No matter what way I form my embouchure, I still deal with the symptoms, and I always have to adapt to them and try to iron out the contractions to an extent. But the symptoms are never 100% non-existent.

*I want to clarify that it is my left side that has the most visual symptoms (i.e. air leaks, uncontrollable rolled out lower lip on the side, and corner moving all over the place), and my right side that looks stable, yet it feels stiff and flacid at the same time, and my upper lip is raised up so much on that side. 

I tried to actually plan out my recording this time. The first thing I did was play a low excerpt with a collapsed embouchure/no tongue (i.e. air-attacks) zoomed in and then zoomed out. The second thing I did was play the same low excerpt with an extremely puckered embouchure (as puckered as my muscles would allow me) with tonguing, zoomed in and then zoomed out. Then I did the same with the higher register excerpt. 




Sunday, June 26, 2016

Milestones: Played Horn in A Group for the First Time in Six Years!


A few months ago I received a message from a former UNI (Iowa) classmate of mine named Michael Conrad. He is the current Graduate Jazz Teaching Assistant at UNC (Colorado)...which is one of the schools I attended in my undergraduate studies. He had asked me to sub for the horn player in the UNC Jazz group he works with. 

At first I was a bit hesitant, but remembered how much I loved playing his compositions in my undergrad. Since then he's gone on to win numerous awards for his compositions. I informed him that I still was coping with dystonia and could play as long as it wasn't anything too crazy. He sent me PDF's of all the music to check and I told him it all looked doable, so I went ahead and took a huge step/leap of faith and drove up to Greeley to rehearse with them. 


I have to say it was one of the best experiences and decisions I've made this year! I was both excited and scared. But if anything, it proved that I have come a long ways with my embouchure dystonia, and that I must not ever give up. Right around the same time I received the news that I was selected as a participant in a research study on FTSED. Going to this rehearsal made me even more ecstatic for the upcoming research. 


I'm grateful to Michael for thinking of me even though I had not played the horn in a group since 2010, and for putting so much trust in my playing...even if it was just a rehearsal...I wanted to put my best foot forward. I also was very happy to see a former classmate at a former school I attended...it brought up a lot of memories and nostalgia from my horn playing days. Which is always an amazing feeling to remember!

PAMA Referral Listing

I am now listed on the PAMA website as a referral. I registered encase anyone needed someone to talk to about FTSED and having trouble finding information on the subject. Again, I'm only doing this for the purpose of leading others to information, research, and/or help with FTSED if they are diagnosed with it and are unsure of where to go/what to do.

Summer Vacation in Washington & 32nd Birthday!

A couple photos from vacation in early June for my birthday! Too many to post on here, but all-in-all it was the best trip taken. Spent a week in Seattle and Olympia visiting family and touring around.
Photo my boyfriend took while on our boat tour!
I met one of the Seattle Symphony tuba players.
Seattle Symphony Orchestra Concert at Benroya Hall where my twin sister use to perform with the Northwest Symphony Orchestra!
Garden of Glass

PMC
My boyfriend and I playing guitar and bass as usual.
Seattle Aquarium
While traveling to Bremerton via Ferry
Crab fishing in WestPort
EMP Museum
Watching an old classmate from UNC-Colorado, Robbie perform on trumpet in a jazz group in a Seattle club!

Happy Teacher!

A couple photos from throughout the year! I'm looking forward for fall to return and school to resume. Currently I'm assistant teaching at a Montessori school for the summer, but still missing my music students soooo much this summer.

Performance at Boulder Theater
Performance with CU Boulder Symphony at Denver Performing Arts Center
Setting up on stage at Boettcher Hall
Kinders get to try out trumpet for the first time!
My fabulous flutes and clarinets playing an arrangement of Great Gates in rehearsal with the strings for the first time!
One of my students performing at the school talent show. 
As program assistant during the fall, I was honored with the task of getting free tickets to the CSO's entire season for all our music students and staff throughout our 3 partner schools.
One of my trumpet students who moved onto advanced orchestra.
Being goofy
Some of me and my co-teachers kinder-violin students.
On the bus on the way to a CSO concert!

Oboist Alex Klein Returns to the Chicago Symphony Orchestra After Battling Hand Dystonia


It was so wonderful seeing some good news for once lately! Today I opened my browser to find news articles posted on Alex Klein returning to the CSO after stepping down in 1995 due to Focal Hand Dystonia. Here is the Chicago Classical Review Article over his new appointment in the orchestra! Congratulations Alex! This news brings so many of us hope and happiness. 

Saturday, May 21, 2016

You're Never Alone


I had the greatest week! Last Sunday my friend and associate principal horn of the St. Louis Symphony visited Boulder to perform the Brahm's Horn Trio at the Boulder Bach Festival. My boyfriend and I went to watch his concert, and then Monday morning Thomas came and watched me teach kinder-violin at school. It meant a lot having him there, because none of my friends from out-of-state have seen me teach since I started my career, and not even my boyfriend has seen my teaching in action.

What I love most about this is that I realized in the last 3 years I've been able to see old friends more than I thought I would, and sometimes more than once. Every time a friend travels through Denver it's like time never passed between us.

I know everyone feels that way with friends, but for me it also brings back a reminder of my old self, my horn-playing self (basically when I felt like I had a definite fixed purpose or calling in life...not that teaching isn't, but the horn was my tool of expression...my voice). It gives me a sense of strength and confidence knowing that my past, my memories are not forgotten or faded inside after everything I've gone through....I guess I'm just happy that the fire burns even brighter inside me when I'm around friends.

I don't know if that makes. I feel relieved to have friends who get me and remain in contact despite the long distance, especially who have been supportive before I lost my ability, and after I lost my ability to play horn. I still can't believe time can go by so fast and yet, I feel as if yesterday I was playing my horn pursing my passion to be a horn professor.

I'm glad to have friends who continue to talk to me about horn playing and know that it's still a huge part of who I am and always will be, and who root me on to never give up hope. So often musician's with dystonia feel they lose a sense of themselves and who they are, and it is a huge struggle. In a way when I visit with friends I feel so much relief knowing that they had a equal impact and part in both my past and present (before I got dystonia, and after). I don't think they realize how important and meaningful that is to me that they've stuck around through thick and thin, and all the transformations my life has gone through.

Enough talking! I'm definitely rambling all over the place and not making sense. Here are some photos from the past week. I'm on vacation soon, and then participating in a research study on embouchure dystonia! But also happy to say I'll have more friends and relatives passing through during July and I'm excited for all the good things that happened and are to come. :-)



Saturday, April 16, 2016

Jonathan Vieker: McGrail Lip Exercises Post-surgery for Ruptured Obicularis Oris (Embouchure)


Wanted to share another great post by Jonathan. The exercises are very similar to the stretches I do. You can find his awesome blog and post here.


Facebook Page: Living with Embouchure Dystonia & Other News

I got around to making a facebook page linked to my blog Living with Embouchure Dystonia. Hoping it will bring more awareness to the disorder.

I'm also excited to announce that I'll be participating in a research study on FTSED in the near future, and I'm currently working on publishing an article as well! I hope that in time I'll be able to share more details on my blog. Until then...thank you for stopping by, and hope to catch up soon. 


- Katie :)


Monday, March 28, 2016

Ice Packing VS Heat Packing




Every now and then I come across musicians who either swear by ice packing or heat packing (or both, like I do!)......or the opposite...they absolutely refuse to do it when injured, mainly due to misusing one or the other because they were not trained on how to properly ice pack and heat pack, or they heard from a professional musician who misused it...yes, even professionals make mistakes (because not a lot of musicians are trained in how to physically take care of injuries). Therefore, I wanted to share this medical post from the University of Rochester Medical Center over the benefits of ice packing and heat packing and when to use either. 

I feel it is vital to ice pack and heat pack if you have a new or old injury to your embouchure. This post shows not only how to ice pack and heat pack, but when to use it, how long, and what exactly happens to your tissue. I hope this helps many musicians who are newly injured or who have a old injury but still experiencing pain, to heal a bit! Or at least prevent further damage. :-)

Sunday, March 13, 2016

Who to Contact for Help Rehabilitating from Upper Lip Injury or Muscle Tear


I came across-----> THIS <----great blog a while ago and forgot to post it on here. I also posted it under my resources on the side bar to the right.


The author of the blog writes:

"I’m Jonathan Vieker, a trumpet player who’s been living with a severe lip injury since May 7, 2010. I created The Lip Rip Blues to help brass players understand lip injuries. 
The morning after I got hurt, as I made a cup of coffee and sat down at the computer to figure out what was wrong with the muscle in my lip, I discovered quickly that there just wasn’t enough information available about embouchure injuries.
This site is my attempt to do something about that."

A HUGE THANK YOU TO JONATHAN for his website/blog! :-)

Month of March Research Articles

Apologies for not imputing much into my blog this year! My first year teaching has been one of the most challenging, yet rewarding blessing in my life. I'm finally doing what I love, but do feel a bit sad over not having enough time to tend to my blog. This blog means so much to me! I'm writing to you from the desk in the photo...I finally have a place to work at home. Until summer rolls around, I'll be posting mainly resources/research articles.

Here are two research articles I've read recently. I'm been searching a great deal to find information over tests focused around the somatosensory part of the brain in musicians with dystonia. Last month I posted an article that explains what acetylcholine is and how it supports the CNS/PNS systems (and the somatosensory cortical neurons).

The first article below is pretty self explanatory; how we should focus on somatosensory, as it may be another key component in research on musician's dystonia, and what these researchers have found. The second one involves some EMG electrode work in stimulating muscles of musicians who have dystonia and how this has helped restore sensorimotor organization.

That is all for now! I will post more if and when I can. Thank you to those who have reached out...I promise to be in touch as soon as possible.

Focal Dystonia in Musicians: Linking Motor Symptoms to Somatosensory Dysfunction

Regaining Motor Control in Musician's Dystonia by Restoring Sensorimotor Organization

Wednesday, February 3, 2016

Neurotransmitter: Acetylcholine



I wanted to share this link over Acetylcholine. It plays a huge part in the process of creating smooth muscle movement, convulsion (too many contractions), or the lack thereof too (muscle weakness), as well as it factors into many other important parts of the body and plays a role in both the CNS and PNS (Central, and Peripheral nervous systems).