Registered for the 52nd International Horn Symposium in August 2020

DMRF Birthday Fundraiser

I probably should have shared this on my blog and on my facebook "Living with Embouchure Dystonia" page, but didn't have time. I'm happy though that despite my lack of marketing the small fundraiser, I was able to raise $57 dollars for the Dystonia Medical Research Foundation (DMRF). I know it's small, but it counts! I couldn't be happier. Hopefully next year I can help raise more! :) Thank you so much to those who helped out. Here's the original posting:

For my 35th birthday this year (been 10 years since diagnosed with Focal Embouchure Dystonia), I'm asking for donations to the Dystonia Medical Research Foundation. I've chosen this nonprofit because their mission means a lot to me, and I hope you'll consider contributing as a way to celebrate with me. Every little bit will help me reach my goal. I've included information about the Dystonia Medical Research Foundation below.

The mission of the DMRF is to advance research for more effective treatments and ultimately a cure for dystonia, to promote awareness and education and to support the well being of dystonia affected individuals and families.

Although Focal Dystonia affects a small percentage of musicians, there is a larger amount of general Dystonia cases which are more severe and degrade people's lives severely. It truly is a complex and debilitating neurological disorder that comes in many forms.

The DMRF also oversees the Musician's with Dystonia Foundation started by former professional horn player Glen Estrin and neurologist Dr. Steven Frucht.

Thank you for any support! 💜💙💜💙💜💙

The Phoenix Project: Rise from the Ashes by Ashley Gulbranson (French Horn)

This amazing recital in March was hosted by French horn player Ashley Gulbranson at the University of Colorado Boulder. I really wanted to attend it in person because I travel to Boulder for perforamances almost every year, since it's not that far away.

This recital in particular was significant! It features new works created for musicians recovering from Focal Dystonia. The first compositions of this kind to exist!! I did however get to watch the live stream which I posted below.

Though I don't know anyone from the project directly since it's been years since I was a student at CU-Boulder, I can't explain how exciting and heart warming this initiative is. Having this disorder is a difficult, unnerving, and solitary journey at times, even if you know others who can relate.

I know a lot of blood, sweat, and tears probably went into this substantial DMA work. Please have a listen, especially if you are a horn player with embouchure dystonia.

Link to the video recording of the recital:

https://www.facebook.com/ashley.gulbranson/videos/10156558376583705/UzpfSTEwMDAyOTAyNzk0NzM4NDoxODI0Njc0NzYwNjQxODM/

The MRI Brass Repository Project March 2019

https://www.gordon.edu/mrihorn

Please donate this month!!! I spoke with Dr. Iltis last year via skype/phone about the project and we had a long conversation over our experiences. It was one of the best conversations I've had over embouchure dystonia. I really wished to participate, however, the deadline had passed, and neither they or I could afford the flight costs from U.S. to Germany, housing and food.

I'm happy to see they've been granted more time!!! I'm hoping they'll receive the funding needed, as there is not enough research being done on embouchure dystonia in general and I would love to see them get as many scans as possible on this rare piece of equipment.

They are using one of the fastest imaging scanners that exist. It can provide more insight as to what is going on inside while we play; not only in the brain, but physically. It is very high definition. They are comparing the imaging scans from the professional brass players without dystonia to the group of brass players with embouchure dystonia. They are also gaining more insight into how playing varies form individual-to-individual anatomically within. This can help educators and musicians begin to really understand further details as to what is involved in the function of physical performance.

I'm rooting them on and so very supportive of this research!!!

New Website! - Focal Embouchure Dystonia

I finally designed a website to link to my blog thanks to a friend recently advising me to do so. I still have a lot more work to do on it, but maybe this will help me reach my advocacy goals and spread more awareness, and provide guidance. Thank you to those who take the time to check it out!

I'm also in the process of updating my blog and rewriting important blog posts, editing, and adding new sections. Thank you for your patience as I go through the process of cleaning house on my blog.

- Katie

https://www.focalembouchuredystonia.com/

More Updates!

It's been a while since I've updated my blog! A lot has been happening so I'm mainly going to explain it all in photos!

First of all, I have posted a new video of my current horn playing on my facebook page Living with Embouchure Dystonia, and in the Focal Task Specific Embouchure Dystonia facebook group. You can see it here: https://www.facebook.com/embouchuredystonia/videos/1415994998449828/  . I filmed this at one of the music schools I teach at. I am warming up before my students arrive for the day.

I got to see an awesome friend, mentor, and professional horn player - Thomas Jostlein and his family again this summer! Like I've said in previous posts, I don't get to experience being in the horn playing world anymore since I'm not in an orchestra, and can't really speak to other horn players because I'm never around them. I can't explain how refreshing it is to speak to a horn player that doesn't look at me like an injured or diseased/cursed person, but instead still supports my success and boosts my confidence by reminding me that I can do it!...I can play and keep improving, and that what I am doing is good! Here are a few pictures from all the times we've got to catch up over the years.

 

I also got to meet Julie Landsman this year who is another huge inspiration to me. She said that she actually just recently donated to Dr. Itlis's Embouchure Dystonia research. It was great to hear her play with that beautiful gorgeous tone. Moved me and gave me so much inspiration.

I've started some artistic projects...check out all the drawings, wood stain art, wood burning art, and furniture refurbishing I've been up to:

This news doesn't necessarily have to do with me. But I wanted to post a picture of my twin sister. She had the opportunity to meet up with her former trumpet section this last year. Here is a photo with her former trumpet section mates: Philip and Natalie Dungey from Seattle. I am so proud of her and miss her trumpet playing! Ally and her husband have a photography business called Sweet Dahlia Photography which you can check out here: https://www.facebook.com/SweetDahliaPhoto/?pnref=lhc . They are based in Washington state and her husband also manages a music store and lesson studio! :-)

Example of Ally and Mario's photography work! :-)

Finally, last but not least. I've started my private lesson teaching again, including several contracts with a handful of music schools around the metro area, so pretty much concentrating on doing it full-time this year and will see how it goes. I haven't completely given up teaching in public schools though...I also teach high brass at Douglas County High School/DC Downbeat band program a couple times a week!

I am looking forward to all the creative and artistic work I'm doing! Please keep sending positive energy our way. I will do my best to keep my blog updated, but am pretty busy!....until next time....happy 2017-2018! May everyone be blessed! :-)