Living with Embouchure Dystonia

A blog about a French horn player's journey with Focal Embouchure Dystonia; one of the only existing documentations of rehabilitation through videos and writing spanning over a decade. This blog shares resources, research, and information on FTSED and other music performance related injuries. Katie also advocates awareness, education, does presentations, provides guidance; and brings the musicians dystonia community together thru online groups, streamed interviews and conversation.

Saturday, August 27, 2016

Monthly Research Article: A Video Guide to Diagnosis and Evaluation of Embouchure Dystonia by Dr. Frucht


Sorry I haven't had time to post recently! I've been busy with summer camp ending and starting another school year. I will post more soon. Here's this months article! Check it out....

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4912816/pdf/40734_2016_Article_35.pdf
Posted by Katie A. Bergløf
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Labels: Embouchure Blogs or Articles, Embouchure Videos, Links of Interest, Medical Resource
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About Me

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Katie A. Bergløf
Hello, my name is Katie A. Bergløf. I'm a French horn player recovering from Focal Task-Specific Embouchure Dystonia. I'm proactive about performance arts health, research, and education. It is my goal to raise awareness about FTSED and provide guidance. I've had my blog since 2011.
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Highlighted Blog Posts

  • (Primary Website) Living with Embouchure Dystonia Info, Guidance, & Groups
  • (Bio, Photos, Recordings, etc.) My Life as a Horn Player
  • (Publication) French Horn Orchestral Transposition Guide
  • (Video Playlist) Musicians Dystonia Live-Talk Interviews hosted by Katie Berglof: Musicians around the world share their journey with focal dystonia. A rare insight into this complex and highly misunderstood neurological disorder.
  • (Video) Timeline: My Embouchure Dystonia and Progress Made Over The Years
  • (Video) How I Currently Manage My Embouchure Dystonia Symptoms
  • (Video) Embouchure Dystonia: Overcoming the Involuntary Spasms & Contractions When You Can't Play
  • Beginning Rehabilitation Methods for Embouchure Dystonia VS Standard Performance Technique Methods
  • (Video) Embouchure Dystonia: Beginning Physical Rehabilitation Strategies for Brass Players (part 1)
  • (Video) Embouchure Dystonia: Beginning Physical Rehabilitation Strategies for Brass Players (part 2)
  • (Video Library) All Documented Rehabilitation Practice Journals
  • Psychological Aspects of Recovery: Mental and Emotional Obstacles Faced with Musician's Dystonia
  • The Role of Mentality or Focus in Rehabilitation
  • Somatics - Body Movement Methods for Facial Pain, Trauma, and Dystonia
  • Devices, Equipment, and A Few Daily Musts
  • Modifications for Playing with Embouchure Dystonia
  • (Video) Myofascial Release Stretches and Embouchure Dystonia
  • (Photos) Embouchure Stretches
  • (Video) Buzzing, Stretching, Breathing, and Strengthening while having Embouchure Dystonia
  • The Importance of Ice Packing and Heat Packing
  • The Importance of Dental Hygiene
  • Non-traditional Medicine and Treatments for Facial Pain, Trauma, and Dystonia
  • Supplements and Natural Remedies for Facial Pain, Trauma, and Dystonia
  • Musician's with Dystonia Facebook Groups
  • Embouchure Dystonia Prevention?
  • MORE HELPFUL RESOURCE LINKS

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Feedspot.com: Top 15 Horn Blogs and Websites

Feedspot.com: Top 15 Horn Blogs and Websites

Performing Arts Medicine Association

Performing Arts Medicine Association
I am a proud member of the Performing Arts Medicine Association. An organization that supports musicians health.

PAMA Certificate

PAMA Certificate

Association of Arts Administration Educators

Association of Arts Administration Educators
I'm a proud member of the Association of Arts Administration Educators.

International Horn Society

International Horn Society
I'm a proud member of the International Horn Society.

From The Balu Mute Website:

From The Balu Mute Website:

Medical Referral Links

  • Dr. Steven J. Frucht, Professor Neurology, Mount Sinai School of Medicine
  • List of Neurologists and Medical Professionals Who Research Musicians Dystonia (My Excel Document)
  • Dr. Kolk, Shulman, Fedderly - Brass and Woodwind Injuries, Surgery, Physical Therapy, and Retraining
  • Dystonia Medical Research Foundation Directory of Physicians, Neurologists, and Healthcare Professionals
  • Dystonia Medical Research Foundation Contact Information
  • Dystonia Medical Research Foundation: About Musician's with Dystonia
  • Dystonia Medical Research Foundation: Medical Treatment Options
  • Performing Arts Medical Association Directory of Physicians
  • List of Performance Arts Clinics
  • Various Performance Arts Health and Medical Organizations
  • MORE HELPFUL LINKS

List of Rehabilitation Practitioners and Medical Treatment Options

  • List of Practitioners (Musicians, etc) Who Help With Retraining and The Recovery Process From FTSED After/Post-Diagnosis
  • Dystonia Medical Research Foundation: Medical Treatment Options for Dystonia
  • Who to Contact for Help Rehabilitating from Upper Lip Injury or Muscle Tear by Jonathan Vieker
  • Dr. Kolk, Shulman, and Fedderly - Brass and Woodwind Musician Injuries, Surgery, Physical Therapy, and Retraining
  • MORE HELPFUL LINKS

Musician Dystonia Research Articles, Case Studies, and Thesis

  • Fletcher, Seth David, DMA. The Effect of Focal Task-Specific Embouchure Dystonia upon Brass Musicians: A Literature Review and Case Study.
  • Focal Dystonia in Musicians. Theresa J. Lie-Nemeth, MD: Spaulding Rehabilitation Hospital
  • Thomas, Denton. DMA. Embouchure Dystonia and the Overuse Syndrome: A Primer for Musicians
  • Thomas, Denton. Symptoms and Pedagogical Approaches to Embouchure Dystonia in the Trombone and Trumpet
  • Hans-Christian Jabusch and Eckart Altenmuller. Focal Dystonia in Musicians: Phenomenology to Therapy
  • Jamie Agee: Crossing the bridge - A descriptive pilot study of sensory tricks and related variables to musicians dystonia onset.
  • Schuele, Jabusch, Lederman, Altenmuller. Botulinum Toxin Injections in the Treatment of Musician's Dystonia
  • Buttkus, Franziska. Functional Effects of Transcranial Direct Current Stimulation in Musicians with Dystonia
  • Wade, Mark. An Annotated Bibliography of Current Research in the Field of the Medical Problems of Trumpet Playing
  • Michelle Heinana, EdD, MS, PA-C. A Review of the Unique Injuries Sustained by Musicians
  • Graduate School of Medicine, Mie University, Japan.: Three cases of focal embouchure dystonia: classifications and successful therapy using a dental splint.
  • A Guide to Understanding Musician's Dystonia and Coping With The Disorder. Edited by Llobet and Molas.
  • Dean, Brett T. A Music Educator's Perspective of Possible Causes, Treatments, and Prevention Strategies of Trumpet Embouchure Dystonia
  • MORE HELPFUL LINKS

Fellow Musician's with Dystonia and/or Injuries

  • Jan Kagarice (Trombone) on Embouchure Dystonia and Injuries
  • David Vining (Trombone) on Embouchure Dystonia
  • Colin Williams (Trombone) on Muscle Tear Injury
  • Reynaldo Daniel Martínez Resendez (Trombone) on Embouchure Dystonia
  • Lucinda Lewis (French Horn) on Broken Embouchures
  • Mark Denekas (French Horn) On Embouchure Dystonia
  • Janine Gaboury-Sly (French Horn) on Embouchure Dystonia
  • Kristin Davidson (French Horn) on Embouchure Dystonia
  • Ashley Gulbranson (French Horn) on Embouchure Dystonia
  • Denver Dill (Trumpet) on Muscle Tear Surgery and Recovery
  • Michelle Glasscock (Trumpet) on Embouchure Dystonia
  • Robert Eshelby (Trumpet) on Embouchure Dystonia and Mouth Guards
  • Jonathan Vieker (Trumpet) On Muscle Tears and Injuries
  • Jon Gorrie (Trumpet) on Embouchure Dystonia
  • Leon Fleiser (Piano) on Overcoming Hand Dystonia
  • Hung Kuan Chen (Piano) On Overcoming Hand Dystonia
  • Andreas Eggertsberger (Piano) on Overcoming Hand Dystonia
  • Jerald Harscher (Guitar) On Overcoming Hand Dystonia
  • Billy McLaughlin (Guitar) on Hand Dystonia
  • Alex Klein (Oboe) on Hand Dystonia
  • Paula Brusky (Bassoon) on Basson-Related Injuries
  • Julianna Nickel (Flute) on Hand Dystonia and Brain Surgery
  • Andree Martin (Flute) Blog on Hand Dystonia
  • Michelle Sung (Flute) on Overcoming Hand Dystonia
  • Anna Detari (Flute) on Embouchure Dystonia
  • Leslie Thompson (Flute) on Recovering from Car Accident/Damage to Arm and Hands
  • Tim Redpath (Sax and Clarinet) on Embouchure Dystonia
  • Chelsea Shanoff (Sax) on Brain Tumor, Brain Surgery, and Ear Damage
  • Steve Leung (Violinist) on Hand Dystonia
  • Roger Frisch (Violin) on Essential Tremor and Deep Brain Stimulation
  • Jean Kaluza (Percussionist) Hand Dystonia
  • Greg Fellows (voice) on vocal dystonia (Spasmodic Dysphonia)
  • MORE HELPFUL LINKS

Musician Dystonia Links

  • What is Dystonia?
  • National Organization for Rare Disorders:: Classifications of Different Types of Dystonias
  • British Association for Performing Arts Medicine: Musician Dystonia Fact Sheet
  • Glen Estrin. Dystonia Medical Research Center: Musicians With Dystonia
  • Musician's With Dystonia Foundation Online Forum
  • Dr. Peter Iltis. IHS Horn Call: Embouchure Dystonia - Hope for the Future?
  • Lucinda Lewis. Broken Embouchures.com: Different Types of Brass Injuries and Disorders.
  • Playing Less Hurt: An Injury Prevention Guide for Musicians by Janet Horvath
  • Musicians Way Blog: Can Focal Dystonia Be Prevented? (Not in all cases...)
  • Finding the Balance: Jan Kagarice, a Case Study of a Master Trombone Teacher by Karen Lynn Marston
  • David Vining, Professor of Trombone Northern Arizona University: Recovering from Dystonia
  • Joaquin Farias Therapy and Rehabilitation Method
  • Horn Matters.com: Bruce Hembd's Blogs Over Dystonia
  • Kagarice, Jan. A Pedagogical Approach to the Issue of Focal Task Specific Dystonia of the Embouchure
  • MORE HELPFUL LINKS

Embouchure and Performance Related Injury Topics

  • Other Types of Musician Injuries and Conditions
  • Musician's with Dystonia Bulletin: Embouchure Dystonia and the Zinc/Copper Nutritional Connection.
  • Denver Dill (Trumpet): Still Playing
  • Wilketone's Review of Denver Dill's book: Still Playing. My Journey through Embouchure Surgery to Rehabilitation
  • Wilketone's Youtube Channel: Embouchure Function Videos
  • Jerald Harscher: The Poised Guitarist (A rehabilitator of musicians with hand dystonia)
  • 'Pops': Farkas Embouchure Is Self-Limiting
  • Trumpet Herald Forum: Torn Muscle Surgery
  • Trumpet Master Forum: Embouchure Injury, Surgery, & Surgeon Dr. J.Simmon McGrail of Toronto
  • Musician's Way: Various Links on Musician Health and Wellness
  • Physioweb.org: Anatomy of the Head and Neck Muscles
  • Wikipedia: About the Trigeminal Nerve and Peripheral Anatomy
  • Trigeminal and Facial Nerve Damages
  • MORE HELPFUL LINKS

Fibres Of The Orbicularis Oris

Fibres Of The Orbicularis Oris
Anatomy of the Face - R. Radlanski and K. Wesker

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